ms not just a diary.

Second to last post ever...

2009-11-29T10:36:00.004Z

Melancholy Dave? I think not...well maybe just a little.

My recent visit to my neuro was...well..not great. The words "the level of your disability" and "we can't measure any improvement" were used. So I guess having a wheelchair is not good if your rated by walking.

There is no more drugs the government will give me... Joy.

It looks like I HAVE done them all. No more jumping eh! No more jumping...

long time no speak

2009-08-28T12:39:00.005Z

Have you seen the legs on that woman! A compliment from a guy in a wheelchair honest.(remember kiss with a fist vid I put on here???. I told you didn't I)
I was going to put up 'The dark days are over' by Florence and the machine, but as you all know.... That's not quite right eh. Still no cure. It's a great track tho. Check it out.(My fave band at the mo)
Hope you are all well

Dave

***News flash...Dave no longer smokes! Nicotine replacement, Vaporizer but no smoke***

A perfect match.... Apart from ms that is.

2009-06-08T10:32:00.002Z

Jen and myself are really happy. A family. We have a dog which act's like she is our little girl so we can say family really.

Yes ms is still rampant in my body but it doesn't effect our life to much.... I hope it stays away for a time. I have never been happier and stress free. It might have something to do with this gap in treatment.

I have had a visit to my new neuro who has taken me off Tysabri with earnest and requested I have a MRI to see where the situation lies. There has been no mention of future treatment as yet, so don't ask. He did say that I shouldn't have been on it as I am high risk of developing PML. The whole 'smurf blood' history does not play well with Tysabri they have found... Some deaths type situ.

Well this is just a short note to say hi and to tell you all that we are fine. Happy and married... Just over 6 months.... Yey. I am not leaving this woman if I can help it. I love her so much and it's still getting better each day.

I found my claim to fame.... I knew someone who went on Big brother 7.... And that is it.

Stay well,
Dave

I still have things to say!

2009-04-06T12:45:00.004Z

I find myself with the thoughts of last year(reading past updates is fun!) and looking at my wants and needs,then and now... To be honest they haven't changed at all. I type with my left hand now with ms restricting my ability a bit more on the right but the focus has changed. Music is still in my life and I want to write more when it comes to a blog. I don't care who reads it... As long as it doesn't infringe on my happy life.

I will be attending my first concert in a wheelchair on Friday and I am nervous. I will have just attended hospital on Thursday for my monthly dose(Tysabri) and I hope I am OK. Will they have a 'special place' for wheeled ravers? Ravers you say...

Yeah insanity comes rife! While I still have breath.

Back to Manc says me.

Stay well,
Dave

I need some ROCK!!!!!!!!!!!!!!!!!!!

2009-04-06T11:52:00.002Z

THATS BETTER. Sorry....Thats better.

Stay well,
Dave

And now a return to normal service...

2009-03-18T08:48:00.002Z

Its been a while since I blogged with regular service. To be honest I think I have missed it. Its a lot harder since my typing has gone down hill. I have a dog which loves gnawing at the wheels on my PC chair and licking my mouse hand during a wobble. Which doesn't help. I have had time to think, which is not always a bad thing. How many people read my rants on here with vigor(doesn't fall asleep!). Does it make any difference... I think the answer is 'No'. Who cares?

Did I start with the idea that I could speak with other like minded people in the same situations... Well yes. The 'thing' is... No one is in the exact same position as me. Life / disease progression. I am happy with my life. Yes it could be better(like have my own house and not worry about renting with a dog!) but I am happy.

I have a beautiful wife and a dog(man's best friend!). They look after me and keep me exercised. I am happy. Could do with more money like everyone else but I am happy. It's strange but true.

I will be back soon honest.

Stay well,
Dave

The death of music on my blog?

2009-03-10T06:28:00.004Z

It has been announced on the news this morning that Youtube.com may loose a legal battle for the UK to view music through the website...

So I think that may be it....

Shit...

Oh well. Not lost yet.

Just a few words from the lost master..

Rest in peace.

Some might have noticed the no action....

2009-01-07T13:55:00.004Z

Some.. The thing is. I am happy!

I have no reason to do my blog anymore. It was here for me when I needed it.

I dont need to bore anyone else.

I still have ms and there is no cure yet...Yet. I have my family of 3 and they need me. Jen,the dog(Bailey) and myself have the happy ever after and we have no need to type. I hope I won't need to vent in the future but if I do.... Here is where I will be. Just hope Tysabri will keep working for me. I have deleted my research blog so please deleate any links. I will miss you all and will keep this blog open. I maybe back later. Maybe. I will check up on you all at some point. Be good to each other.

Life is like an ocean:

Keep well, PEACE OUT,
Dave

I am married!!

2008-11-19T08:46:00.004Z

Mr and Mrs. Who would have thought it eh. So how is it?

Thats all ya gotta, gotta, gotta do!!!

Happy daze.
Dave

8 days till happy ever after.

2008-10-17T14:09:00.003Z

Dj is going to play music from thye 80's onwards.....who else thinks he going to play stuff like this?

Dave

This looks like my kinda fun.

2008-10-03T07:14:00.003Z

Kitundu PhonoKora Demonstration

I wonder how you get into that? Great tune eh.

Stay well,
Dave

And you know what I am like for rhythm...

Health of Dave update.

2008-10-01T06:08:00.003Z

I seem to be the same as I have been over the last 6 months. It looks like Tysabri is living up to its claims and I am OK with it. Yeah its a pain going to Preston hospital every month but it seems to be OK. There is the worry of PML every month but I am happy to leave it up to professionals to keep me safe. I still feel like I have ms, the disabling effects wind me up but what are you going to do eh? I still have it.

Retirement is working for me. I can watch anything I want on my large screen and listen to what ever music on my computer. I have the love of a good woman so what else would I need? We get married in three weeks and I can't wait.

Stay happy,
Dave
Heavyweight Champion of the World - Rev

love this!!

2008-09-24T07:57:00.002Z

"Handlebars" by the Flobots

No longer depressed as Jen said "I love you". Less than 5 weeks to go!!!

Stay well,
Dave

What ya gonna do.

2008-09-17T12:08:00.003Z

I got my first sign that I am getting old this week, as if typing with one hand isn't enough. I have had the "going grey" hair before but now I know. On the way down the stairs in the stair lift (I know!) I looked to left and to my right and I could see my grey locks flowing down either side. I might be a bit old for long hair, I might have a tired body which aches and groans and I might be putting on weight in the old man area's(yes I have an arse now!!) but nothing, no but NOTHING ON THIS DAM EARTH can prepair you for this. WHY GOD WHY??? IS IT NOT ENOUGH TO GIVE ME THIS DISEASE!

YOU HAVE TO BE JOKING!! I found my first grey...I find this hard to put into words.. Pubic hair! I am 32 and have a great life but my god SHE is now taking the Micheal.

Depressed,
Dave

2008-09-10T06:02:00.002Z

This is so exciting and its starting today.

Thanks lh for the notice 4 months ago.
Stay well,
Dave

The reason why i called tysabri a drug

2008-08-03T09:50:00.001Z

yesterday is as follows. Apart from the hang over that I had, head ache, nausea and the bruise on my arm that makes me look like a heroine user. You get news reports like this: http://uk.reuters.com/article/hotStocksNews/idUKDUB00068320080801 Which don't help.

Is it sensationalist news or are they just trying to scare the b'jesus out of people who are on it? Definitely part of a hangover I didn't want. Its a medication, a "med". Was I right to say the word "drug" in a derogatory fashion?

I want a cure not a therapy. Not something that makes me look like a smack head! I would get out of it but the promise of a longer life without relapse...... They don't do they. Longer life yes. Without relapse no. I am getting married in October. I would like to have a life with Jen. I guess that's why I go to hospital every month from now on. I love Jen and I want to be happy with her for the rest of my life. Sensationalist news... A Pox on everyone. Tysabri a pox on me???

Here is to the on-coming brain disease eh! The danger is if you don't read the whole page. This bit is the issue "The latest slide means shares in Dublin-based Elan have lost 70 percent over the last week. The stock slumped 30 percent on Wednesday after disappointing data on an experimental Alzheimer's drug Elan "

Alzheimer's drug.... They started the story on an ms drug and the risk of PML..... Oh that was the last sensationalist news for Elan... Right, I see.(said the blind man!) It doesn't matter that tyasbri may help people, it matters on the stock slumped 30 percent because of another drug they are trialing... Ahhh today's lesson learnt. Tomorrows lesson will be brought to you with the letter "P" and the number "4".

Florence and the Machine - Kiss with a Fist

Sensationalist news...Its not whats written, its how you decipher it!!

Stay well, I am feeling much better thanks,
Dave

The day after hospital visit...

2008-08-01T06:25:00.002Z

Urggg. For the first time, the nurse had difficulty finding a vein to stab me in on my right arm. I have two bruises there now. Left arm was fine and they gave me a pint of clear toxic doom. I feel ruff today. I always feel ruff after. Not as ruff as the smurf blood but ruff all the same. I don't feel like it's a placebo any more. If it makes me feel ruff then it must be doing something eh?

Good news for this week. Everything is done for the wedding. I have a suit with waste coat, top hat and tails. Very Victorian look which is very rock for a wedding. Almost gothic look. Dark and beautifull yey!

Happy Dave and happy Jen!

I now have a stair lift. Yey! It makes me feel old. Boo! Oh well. Time for me to fall down my after drugs hole for a couple of hours. Looking forward to the upside soon.

Stay well,
Dave

Just so you know.....,If your intrested

2008-07-28T15:39:00.002Z

Love these guys.
The Ting Tings - That's Not My Name

Jen and myself get our wedding day on the 25th of october!!!!

This is where Jen say's That's not my name.

Stay well,
Bob

I will be back soon.

We need more coffee...

2008-07-04T09:11:00.003Z

Really!

Have a look at this(CLICK HERE):http://newsok.com/how-daily-doses-of-caffeine-may-battle-multiple-sclerosis/article/3264352/

Can you work out the amount of coffee we have to drink... Per day for a human to drink? (6 cups for a mouse... 6 times your body mass per day for a human? I take it you can't have milk or foam so cappuccino is out. No sugar either as diabetes might be a problem. Could this be a cure? Does anyone want to try?

Stay well,
Dave.

Sick of the silence.

2008-06-30T07:02:00.003Z

Right! I am back and in working order(well ish!). I thought I would give an update and show you all that I am not dead. Life is going well and we are pretty much settled in the new house. Jen has a changing room and the kitchen is all at wheelchair height so we are both happy(yes I now use Clair in doors too.The self propelled not the battery powered one. I still don't have a name for her,any suggestions?. Let me tell you about our new house.

3 bedroom and 2 gardens, semi-detached and roomy. All mod con and it's luxury. I never dreamt it would be this good. We have a few things to do with it but I feel I am at home. 32 and retired eh! Who would have thought?

Treatment at the moment is Tysabri. I was scared at first after all the horror stories but it's not bad. I would rather there was a cure but a treatment is better than no treatment at all eh. Once a month from now on I have to go to the nearest city hospital for infusion and I get to pee in a cup so they can check for white blood cell count. A small blood test then I am done. I feel like a pioneer racing toward the unknown. If we want to find a cure then we have to try the scary treatments till we do eh?

Now for some musicin the monly way I know how:
Radiohead - Scotch Mist

A film with Radiohead in it made for New Year's Eve, 2007. Features every song on their new album IN RAINBOWS, the "physical manifestation" out now in stores.
Amazing or what? 52 Mins of music 52 mis of Radiohead. Welcome back Dave eh.

20,000 visitors wow! Thankyou all.x
Stay well,
Dave.

return of Dave?

2008-06-14T15:34:00.002Z

sorry for delay of updates. Awaiting broadband connection in new house. Updating on my mobile phone and it hurts my thumb! I have to tell you all that i have stated new treatment.... And its tysabri.....!! Stay well. Dave

I am so happy to be away from Manchester!

2008-05-17T06:11:00.006Z

No stress or trauma. I am eating healthy and am I....No, WE are getting MARRIED!!!!! I can't wait to put the ring on finger and show eveyone how much we mean to each other.

There is one thing tho.

Just one.

She has this as a ringtone for when I call...
Booty Luv - Some Kinda Rush

The strangething is......I am starting to like it alot. What happened to the Rock god that is Dave eh? It must be love!

Right the title... I love Manchester. I just had a bad patch while I was there(diagnose for 1). As everywhere does, there was a few people there who I didn't like. This city had too many dislikes on the people frount. The city is amazing I fell in love there so it is great honest. I met friends there, real friends who I wouldn't have met anywhere else and I will stay in touch with. Then there is the people who bring the place down and not in a good way. They are the people who should stay out of my life. I hope it stays that way. The strange thing there......I wish them all the best. Get on with your life and stay out of mine!(that is for 1 person in perticular and she knows who she is!)

Stay well,
Dave

An Apology...

2008-05-08T16:07:00.002Z

I need to make an apology to someone I have recently upset. I wrote something in my blog about them and shouldnt have done. They know who they are so here it is...
Im truly sorry to have upset you...
I hope this makes amends as I wouldnt want any ill feeling between us.
Stay well,
Dave

The summer is here.... Run to the hills!!!!!

2008-05-07T05:56:00.003Z

The heat is knocking at our door according to the weather report....Oh joy. I wondered why my body was in pain. Its not just that, I think its effecting my memory too. I have lost my mobile. It will be in the house. I haven't been out for some time now. About 2-3 weeks, I don't remember. I have tried calling the phone from the landline but the the batties have run out on my mobile. We will not be moving in three weeks if I can't find it. I need a number from it.... dam sun!(and its still counted spring dave!)

Some good things have happened over the last week with regards to the wedding. We have a dj, music for the during and after(some classical some rock and about 5 different levels of music). We have a meeting with a photographer tonight. We have a place to hold 150 people and feed them. Jen is making the invites and dealing with everything else.(god send! Love you babe) She even suggested that that we don't have a gift list and we should give the option for guests to make a donation to the ms society instead!!!!(she made webpage and everything!) I was looking forward to pressies but no. This is the first thing isn't it.....Women control the world hits home! She is amazing. I can't wait to get married to her.

I just hope the move goes as well.

Stay well,
Dave

I have been on holiday...

2008-04-19T06:01:00.003Z

This is the reason for my absence. Jen and myself traveled to Devon for some peace and tranquility. On the day of our return I attended hospital for an MRI and a shock reality check. We intend to move.... Again! I think being on the ground floor might make it easier to get out. We are getting a house with a Stanner stair lift. Also for new news......Drum roll please...... We are getting married!!!!! October 25Th this year!!!Yey!!! I have a new wheelchair(Clair2) with a Joy stick and batteries also I have a chair for the bath. My god.... How disabled am I?

I can't believe I have missed these guy's from my list of music that I have had on here.
Joy Division - Transmission

Sorry we have been away for some time. I will try and keep you informed of any new developments. Hope you haven't missed me too much.

Stay well,
Dave

Just a comment.

2008-03-26T07:08:00.003Z

For anyone who doesn't read comments left on blogs(recieved yesturday):
AlecDroz has left a new comment on your post "Sorry I have been away for a while.":

Hi,

The results of a new survey of people living with MS and care providers were announced today by the National Multiple Sclerosis Society and by Acorda Therapeutics. A press release announcing the results appears below. I am sending this information to you in the hope that you might find these new statistics about MS of interest for your blog. If you know of any other bloggers who might find this of interest I also hope you will share it with them.

In many cases the results are not surprising, though they do provide confirmation of some widely help opinions among people living with MS. Fully two-thirds of people with MS report difficulty walking and many find that walking difficulties affect their quality of life and their ability to work. But the study also presents some new findings related to mobility. Nearly 40% of people with MS and 50% of their care partners report that they rarely, if ever, discuss mobility issues with a physician. Almost 47% of MS patients report that difficulty walking has increased the cost of their care. And although 92% of people with MS report that use a mobility device (wheelchair, scooter) and say it is "worth it," 45% of people with MS report that they are or would be embarrassed by using a mobility device. These findings could have important implications in helping people with MS who experience difficulty walking and other mobility issues in the years ahead.

If you would like any additional details regarding this study, please feel free to contact me. I hope you find this information of interest.

Alec Drozdowski
Tel: 212-253-8881
Fax: 212-253-8241
berrypr.com

Loss of Mobility Found to Impact Quality of Life and Emotional and Financial Health of Most People Living with Multiple Sclerosis
Tuesday March 25, 10:00 am ET

Two new complementary surveys provide groundbreaking data on the impact of walking impairment on people living with multiple sclerosis, revealing challenges related to quality of life, family relationships, independence, work, financial security and other areas

NEW YORK & HAWTHORNE, N.Y.--(BUSINESS WIRE)--The symptoms of multiple sclerosis (MS) that affect mobility have a significant impact on quality of life, safety, and financial and emotional health among many people living with MS, according to the results of two 2008 surveys conducted by Harris Interactive on behalf of Acorda Therapeutics, Inc. and the National MS Society. The findings, gathered from interviews conducted among representative samples of 1011 people living with MS and 317 care partners, provide new data related to the impact of mobility loss and walking difficulty on different aspects of daily life for people with MS.

Among people with MS surveyed, almost two-thirds (64%) experience trouble walking, the inability to walk or loss of balance at least twice each week. Of those people with MS who report trouble walking, 94% find it at least somewhat disruptive to their overall daily life, with 63% finding it very disruptive or disruptive. Fully 70% of people with MS who have difficulty walking* report it to be the most challenging aspect of their MS. Despite these findings, 39% of the people with MS and 49% of the care partners who were surveyed report that they rarely or never discuss mobility issues with a physician.

“Among the many important conclusions we can draw from these studies is that they indicate we must educate more people with MS and care partners about the impact of mobility loss and the options now available to address mobility challenges,” said Dr. Nicholas LaRocca, vice president, health care delivery and policy research, National MS Society.

The studies also found that fatigue is a very common symptom of MS. Among people with MS, 76% indicate that they experience fatigue at least twice each week. Of those, 95% report that fatigue is at least somewhat disruptive in their daily lives, with 60% reporting that fatigue is either “disruptive” or “very disruptive.” Fatigue is also known to have an impact on mobility and balance for many people living with MS.

“Many people do not realize the extent to which symptoms such as fatigue can affect people living with MS. Physical fatigue is a very common symptom of MS that can also affect mobility and balance. This study clearly demonstrates that it is essential to assess the impact of multiple symptoms in MS in order to develop effective educational programs and treatment strategies,” observed Dr. LaRocca.

Fear of mobility loss is a major concern among people when they are first diagnosed with MS. The surveys found two of the most commonly cited concerns among people with MS when they are first diagnosed are restrictions on daily activity (78%) and the diminished ability to work (76%). Other findings include:

--

A majority of people living with MS think that walking problems

due to MS have some or a great deal of negative impact on:

--

the ability to carry out daily tasks, such as shopping or going to the bank (70%);

--

self esteem (69%); and

--

the ability to travel (66%).

--

58%of people with MS who have difficulty walking say it caused

them to miss common, significant life events, including 22% who

missed a wedding and 26% who cancelled vacation plans.

--

Of people with MS who have difficulty walking:

--

74% report that family members had to take on more household

responsibilities because of difficulty walking;

--

68% find that getting around can be dangerous due to difficulty walking; and

--

47% find that difficulty walking has increased the cost of their care.

In addition to exploring the impact of diverse MS symptoms on the lives of people with MS and on care partners, the surveys also examined the tools that people with MS are using to deal with difficulty walking:

86% of the people with MS who use a mobility device report they do so to maintain their independence and 54% because of frequent falls;
92% of people with MS who use a mobility device report that using a mobility device is “worth it,” though 45% of people with MS report that they are or would be embarrassed about using a mobility device; and
36% of people with MS who use a mobility device report that they do not use a mobility device as much as they should.
“These surveys provide important new insights about how walking disability affects the quality of life of people with MS, their families and other care partners. Examining walking disability from different perspectives can help provide a better understanding of its prevalence and impact. These findings, coupled with previous research on aspects of walking impairment such as the use of assistive devices, highlight the need to continue to develop new treatment options,” said Andrew Blight, Ph.D., chief scientific officer of Acorda Therapeutics.

Mobility challenges are also found to have a profound impact on the careers and financial health of many people with MS and care partners:

Among people with MS who are employed and who experience difficulty walking, 44% have had to take days off from work and 34% have had to work reduced hours because of difficulty walking.
Fully 50% of people with MS who experience difficulty walking report that their living expenses have increased either a little (32%) or a lot (18%) as a result of mobility issues.
Among care partners who are employed, 46% report their work has been negatively impacted, including 32% who have had to take days off as a result of their care giving responsibilities.
“As someone who has lived with MS for over two decades now, I see that people with MS are living fuller and more active lives than ever before, but we clearly have a long way to go. For me, MS and especially mobility issues have had a direct impact on my ability to work and the cost of my care. These surveys shed new light on the challenges that thousands of us with MS are experiencing every day,” said Mimi Mosher, a patient advocate from Mechanicsville, VA, and a person living with MS who uses both a scooter and a wheelchair.

The full results of the surveys will be presented at a special media briefing hosted by the National MS Society on April 8 in New York City. The surveys were sponsored by Acorda Therapeutics in collaboration with the National MS Society.

*In this survey, mobility or difficulty walking was defined as having trouble walking or the inability to walk two or more times per week.

About the Study

The two surveys were conducted online within the United States by Harris Interactive of behalf of Acorda Therapeutics and the National MS Society between January 28 and February 25, 2008 including one survey among 1011 U.S. adults who had been diagnosed with multiple sclerosis and a separate survey among 317 U.S. adults who are currently somewhat or very involved with caring for a family member or friend with multiple sclerosis. No estimates of theoretical sampling error can be calculated; a full methodology is available upon request.

About Multiple Sclerosis

Multiple sclerosis interrupts the flow of information between the brain and the body and stops people from moving. Every hour in the United States, someone is newly diagnosed with MS, an unpredictable, often disabling disease of the central nervous system. Symptoms range from reduced or lost mobility to numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with more than twice as many women as men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and 2.5 million worldwide.

About the National MS Society

MS stops people from moving. The National MS Society exists to make sure it doesn’t. We help each person address the challenges of living with MS. In 2006 alone, through our home office and our 50 state network of chapters, we devoted nearly $126 million to programs that enhanced more than one million lives to move us closer to a world free of MS. The Society also invested more than $46 million to support 440 research projects around the world. We are people who want to do something about MS NOW. Join the movement at www.nationalMSsociety.org.

About Acorda Therapeutics, Inc.

Acorda Therapeutics, Inc. (NASDAQ: ACOR - News) is a biotechnology company developing therapies for spinal cord injury, multiple sclerosis and related nervous system disorders. For more information, please go to www.acorda.com.

About Harris Interactive®

Harris Interactive is a global leader in custom market research. With a long and rich history in multimodal research, powered by our science and technology, we assist clients in achieving business results. Harris Interactive serves clients globally through our North American, European and Asian offices and a network of independent market research firms. For more information, please visit www.harrisinteractive.com.

Sorry I have been away for a while.

2008-03-22T06:48:00.004Z

The first tune I heard today was this young lady. Hasn't she grown up nicely. A good home grown, English girl who traveled to the US and made it big time. Anyway.....
Estelle featuring Kanye West - American Boy

Its just one of those tunes you can't get out your head once its in. I just had to infect any readers here. Its a good thing that I have a small collection of massive rock to fall back on eh!

Lets break you back in to reality with this eh.
My Iron Lung Acoustic

And my god this:
Tool - Jambi - Morgasmo

Thank god for rock eh. What would I do without it?

I spilt a cup of boiling water on my leg when making a cup of coffee and burnt my leg...Badly. I have a burn which is two inches long on my right thigh. It been without dressing or pants for a week. I have it dressed now and it healing nicely. I felt like a fool sitting with one leg naked and this popped blister that looked scary. We live and learn eh.

MRI results back in for my spine.... Neuro wants a head one as spine shows no increase on scaring plague in two years since last one. The words used were no progression in two years. I don't qualify for Tysabri treatment without it. The disablement has changed for sure, in my eyes but I am no neuro. We wait with baited breath.

Stay well,
Dave

Awaiting MRI results...

2008-03-12T07:29:00.004Z

This vid has no relevance to whats happening in my life I just like it and I heard it this morning. Hope you like it.

Elbow - Grounds For Divorce

I think I have forced the NHS in to action after telephone call and chasing them for action. I now know how much admin they have to do so I am leaving them to it.

They need to get all this information to the new neuro so she can make a decision if I should go on the drugs and which drugs I should go for if not. Strange to have to wait.... But there is nothing I want to do without her decision.

Stay well,
Dave

Things are looking up.

2008-03-06T07:33:00.002Z

Really! Got some new music for ya...I like these guys.
We are scientists:The great escape

It might not be new to you but new to me. Talking of new things.... I have a new Claire(the wheelchair) en route. I think they are just going to fix the one I have rather than replace it.

No pain today and its strange. Don't get me wrong I am thankfull but its like I forgot to put on a pair of pants on. Somethings is missing. Its strange but I don't miss it. Anyway enjoy the tune.

Stay well,
Dave.

Where is the...

2008-03-03T10:19:00.003Z

Machine Head - Davidian

Ahhh. That's better. This tune has been dedicated to me by Bobbeh an old friend from earlier on this blog. I think it covers what happened over the last couple of days. I broke my wheelchair again. Going over backwards and snapping the back rest. Painful. Just painful. The hardest thing is that I need a new one and can't get out. I have no ms nurse at the moment and getting a new wheelchair will be a mission.

Well I have some admin to do so that should do, I won't get bored.

Keep rocking,
Dave

Start from the begining

2008-02-26T07:02:00.002Z

Nizlopi - Start begining.

New single out 17th March. Come on boys!! Love them.

Dave

Nothing to fear.

2008-02-25T14:45:00.001Z

Radiohead - Pyramid Song

I love this tune. So simple, so beautiful. Vid is messed up but I love it. Such is life eh! Beautifully strange.

I have a few major things to take on board including the new drug.... Its going to be a hard one. Hmm.

Dave

Just warming tunes.

2008-02-21T07:15:00.005Z

One of my favorite Chemical Brothers tracks and video's Elektrobank:

A vid that brings back memories of when my body used to work properly. I didn't do that by any means but the irony is warming to the cockels. Its amazing that the old tunes still give me the same rushes of pleasure regardless of how sick I am. I think thats how I going to enjoy this life of perpetual agony and misery. I am going to enjoy every bass line, every drum beat, every tune.....I am not going in silence!

"I don't suffer from insanity, I enjoy every last minute of it."

Rock on peeps!
Dave.

O got to shake myself awake.

2008-02-19T07:24:00.003Z

Right down to the music Mark Ronson: Just (feat. Alex Greenwald)

I know its a "re-mix". I know its from Radiohead....But its really good. The trumpet solo kicks ass. And I feel its an easy step... To ease you back in. ENJOY!

I have been busy also. I have been reading reports on Tysabri and the fact that it can give you tumors but now I don't care. I want to try it. Its got to be better than doing nothing eh.

Back to world of Warcraft..

Stay well,
Dave

New year new music.....Sounds like a new year resolution to me!

2008-02-08T10:55:00.000Z

Todays music has been picked up from a new website that I am going to be visiting alot. As Pandora has removed access for people outside the US I have been lost in a music void. My father found an English version.... A UK radio which will help me find new music!!! Its a great site which holds most of my favorite songs and band names and will show new interests too. Just look at this:

www.last.fm

As a thank you for my US friends who removed Pandora.com from my favorites I give you this:

Sixteen Military Wives - The Decemberists

Hope the new music is viewed in the greatest way. I found new music without your help!

Have a nice day.
Dave

Street spirit (Fade out) by Radiohead

2008-02-04T11:10:00.000Z

Sorry. I know have music back in my life and these guys always kick me back into life again. No to fading out here!!!

I struggled out today and I loved it. I had to pick up a delivery of music from the post office. Lots and lots of Radiohead. I will never again throw out music again. No person will ever get me to throw music out ever again! Ever!

I feel outraged to think that someone suggested that I throw out Radiohead. Have them all now! So ner!

Stay well and musical,
Dave

The day before my birthday.

2008-02-01T10:45:00.000Z

Here again... Its funky getting old eh! Time for some oldies but goodies eh.

Nightmare on wax - Les Nuits

32 coming up and I look forward to what the next year has to bring. Got the apt for the MRI. 11 of feb....Joy. Next step drugs.

Keep it chilled Dave.

Stay well,
Dave.

Just keepning in touch.

2008-01-25T14:12:00.000Z

Amazing what a difference one 'bleep' can make to a song! too funny!!!!!

Keep smiling and stay well.
Dave
(thanks tom)

New start.....

I have just looked over the past year on my blog..... Its a bit of a shock. A small window of time where I can see a lot of changes in me. States in happiness and sadness. Differences in music. The high and the lows. The changes in me have scared me. I know that I don't spend as much time here. Not as much as would like. Most of my computing time is on World of Warcraft and it saddens me. I am a funny guy and that seems missing of late. I think that vid brought it back. There is not as much music here anymore........ That will have to change!

So...This Tysabri....Good or bad?

2008-01-10T10:10:00.000Z

Questions have been running through my head. Do I want to try this? What color is it? When do I start? She said it's white! I have read the reports. People have died from it.... It's a risk isn't it? Worried hippy here.

What if's are fluid around me and I am drowning. Tysabri... I am a favorable case...Case. Shit! I am a case! Time to accept another jump into the unknown... I would rather hear the noise of an engine and the feeling of getting ready for a parachute jump. I have heard good reports about Tysabri. I am on the waiting list. Should be about a month. MRI before that. It's the 'not knowing' that I find difficult. I am just going to go for it. PMA after all!

I have taken harder drugs with equal risk for fun. Lets give it a chance.

The thing is... Do you know the waiting time for a MRI on the NHS? Its about 3 years if you don't have a proven thing wrong with you. YOU GET A DIAGNOSIS AND ITS DAYS! What do you need to be diagnosed....an MRI. That's messed up. Anyway I have new things to think about. White stuff. Satan's sputum or nectar of the gods? Hmmm, we will see.

Stay well,
Dave

Bring on the new nero!

2008-01-09T08:42:00.001Z

Right... Today is the 1st visit to my local nero. You know the score.... Pee in this cup, how far can you walk unaided. That type of the thing. I don't even have a GP yet(I have an appointment on Friday!)The strange thing is, I am as nervous as I were when I went to my first. When I get his name I will of course put it up here. I know I won't have bad news like last time but I still have that feeling. Wierd eh!

Up early and ready to go 2 hours before I have to be. I will compleate this update later. Well thats if I don't get back on World of Warcraft with my dark elf Shallot.Hehe. I don't remember the world I am in or what wow server I am on Nat. The memory is not as good as it used to be. Speak soon.

Stay well,
Dave

New neuro : Dr Kowalewska -Zietek (female)
New drug to try: Tysabri (natalizuhab)
I knew there would be something.

Errr...Sorry it's late but happy new year!

2008-01-04T07:24:00.000Z

Everything is 4 days late since Xmas. I blame the Cafe Del mar back catalogue and world of Warcraft....OK its my fault.

It's been really good for me to get back to enjoying my time surfing the net and playing games. I have a 3 day beard and an ever growing bum print on my PC chair and I don't care. This retirement thing rocks. No worries....Really!

Well there is one thing.... Jen Say's I snore. I never used too. I think its a sign that I am now relaxed and comfortable. I am sure its not Warcaft. Maybe we need a new bed. Joy. More money. Oh well.

My legs are abapting to the extra work and I am finding the excercise enjoyable. It's a pain not having everything very close but I am getting used to that too. I like this year so far. New years resolutions... I have not made any. Don't promise yourself any thing. That's it. I think I am happy with that.

Well I am back! Hope you had a good holiday season and Santa brought everything you wanted.... And no cure yet so I guess we have to get on with it eh!

Radiohead Videotape - In Rainbows - Live from the basement

I can't wait for the album. Next one on my shopping list.

Stay well,
Dave

Merry Christmas everyone.

2007-12-23T11:31:00.000Z

This is a hard Christmas so far. The background stresses are full force at the moment. My health is showing its ugly face and its taking all my strength to hide it. I thought once we were here it would be "plain sailing" but we have taken on a big, big change. Jen has taken on a big issue with me. The extra movement/excesses is proving to be difficult. Jen has seen me at my worst. The wet, naked Dave out of a bath should have been enough to set her stress levels through the roof but Jen dealt with it. She has some under lining anger issues but she hasn't killed me yet(he says smiling). We have some family events over the next few days and I even have a pub visit planned with some old friends so I maybe away for a while. I just thought I would wish you all a happy and pain free Christmas.

Have fun and stay well,
Dave

My first day on my own in St. Annes

2007-12-17T10:42:00.000Z

Its nice to sit down and listen to music again. I have a 'thing' for Cafe' del mar and Jazz that Jen doesn't. I now feel like I am home. I can make it out on my own too but today is for my music. Jen has gone out today. I think a day trip to Manchester shopping will do her some good. She is picking up some Christmas presents but I think familiar shopping with my money might make her happy.(a short term fix but a fix non the less)

Let me tell you about St. Annes in a wheelchair. The buses up here are different than in Manchester. Wheelchairs in the city have priority over prams and pushchairs so its easy access to any part of the city. Going to the local bar or pub have easy access also. The pavements are hard work but you can get about. In St. Annes its a bit different. The pavements are harder work. Locally there is an issue with substance which effects pushing your wheelchair on long self propelled journeys. If you have batteries in a wheelchair I would think its fine. There is many of the older generation here in monster trucks riding the pavements with the greatest of ease. I am just waiting for one of them to say "Eat my dust" and leave me behind cackling like a witch on their way. The buses are a different issue. Well look at this:

No priority for wheelchairs. It's OR. I had to wait 6 buses to get into Blackpool. There is no policy apart from '1st come 1st first served'. There are so many young families here I am surprised I got on at all.....I am not bitter honest but we are not having kids just to be given a priority.

I will get back to normal soon honest. I am just waiting for a bus eh!

Stay well,
Dave

New life....Same broken body.

2007-12-15T11:54:00.000Z

Its weird. I had big plans for us when we got here. The grass is always greener I guess. I have had 1 old friend contact me. One! Friends who I thought would be here to say "Hi." haven't. She told me one guy thought I was dead. One guy to knock off the Christmas card list eh. I was hoping Jen would fit in with a group. There is no group. I can tell she is sad and missing her friends. I hope I can fix this.

Oh....The broken body bit. I fell down a flight of stairs....Backwards. My body is still getting used to the extra exercise and Elvis knee's don't help. I climbed the stairs and when I reached the top step my left leg didn't move. Right leg started to wobble. I went backwards and grabbed out for the banister. My hand held tight with my body falling down the stairs. I felt the muscles in my left arm and chest rip. I let go and bounced down the stairs banging my ribs on every second step. I know how to fall and reduce damage so I didn't break any bones. My ribs got a bit pulled but the worst damage is my pride. I had a couple of nights hard sleep but I am good now. Still a bit painfull to touch but I guess I am ok now. A couple of days rest and I will be fine.
Underworld Crocodile

I just hope I can get a few friends round to make Jen feel more comfortable.

Stay well,
Dave

Oh my god....We are in!!!!

2007-12-10T10:21:00.000Z

We have taken a few days just to relax(for me anyway) and get on with a few things. I am settled. Jenny has job. We have money and a beautiful home and I am retired...... Yeah I am retired.... I haven't had time to think about that before now. Now I am retired... What am I going to do now? Hmmmm. Time to think about it I guess. Time to get a flat cap and a really good hobbie.

Lets take a look at what St. Annes from my view point:

I think I may be happy here.

I think this place has art on its mind.

Or maybe a dark side to it.
Lets see what I can do here eh.(and no I won't do wall art like this!)

Stay well,
Dave

Oh we do like to be by the seaside...

2007-12-05T09:26:00.000Z

New house, new stairs, new life starts here. What a week it has been! A mass collection of great extremes of emotion and physical excursion.(common terms..trauma and drama!). I would like to say I dealt with the changes with the greatest of ease but I would be lying. Jen took the brunt of the stress and then I'd try to fix her, I'd fail but at least I had tried. Then I would get stressed and I would sort myself out. Keeping your head down seemed to work. It did. We are here, bruised and bumped but we are here. If I didn't have Jen I would still be in Manchester.

Let me tell you about our great house. Its a maisonette....A house within a house....A mini house.... A two up two down..... It's beautiful. Hard work but great exercise for me. You come into the house go up one flight of stairs and open the door to our house. Wood flooring in our fronts room, tiled floor in kitchen, stairs to the bathroom and bedroom and our bed is on the top floor. You spend two years lying down and now I have to work my body just to rest. My Elvis knee's hurt but they are getting better. It's hard but worth it. I have even done press ups and sit ups and I feel stronger. I still have ms and it is evident that I am disabled but I feel.....Good. The house is great and I am in St Anne's with the woman I love......No matter how much she shouts at me(It's not that much honest).

The bills are all sorted out. We are going to be fine. No Maria and no stress. Who'd have thought eh!

I will get music back on here soon.

Stay well,
Dave

Happy Dave....

2007-11-22T08:38:00.000Z

3 days to go.

Jen will be so proud.Hehe. We have a couple of things left to do. I have some rushing around to do today but we should be in on Saturday morning. Fingers crossed eh. Retirement here I come. Shouldn't be to much different from what I am doing now. I will be back up and running early into December. If your lucky you will get another update tomorow.

Stay well,
Dave

5 days to go!

2007-11-20T10:19:00.000Z

I can't wait. Every bit of music I hear sounds like a celebration. Jen goes to work and the classical music comes out to play. There is a new section on Pandora where you can listen to classical and I think it will be on all day. I am so happy it's great. I just need to relax and not get over excited. I want our first week, at least, to be really good in our new home. Jen makes me happy and I hope this move will make her happy too. She is amazing and I love her so much.

Stay well,
Dave.

I love Manchester....

2007-11-19T14:33:00.000Z

Honest... I have had some great times here. I will miss it. Yes I have had some ruff times here but like everything else you have to except the ruff with the smooth.

The music here has enlightened me. I will miss it when we go. Take a listen to this or I will moan:

Trentemøller - Moan (live)

Manchester gave me Jen and she is the light in my life.

I am getting good at this bill administration. I have sorted out all the bills for the new place..... All we need is to move. Yes I have to reapply for for a large group of my benefits but we can do that when we get there. I have a strange feeling that there is something missing.... Something is not quite right. Just a feeling something is wrong. My memory is terrible.

Stay well,
Dave

Strange day.....It's going to get stranger..

2007-11-15T12:51:00.000Z

Had the pleasure of a next door neighbor today, no not Maria thankfully, we chatted for some time about the future and the move to St Annes. I am sorry for leaving her behind. A great neighbor to have. In fact the only neighbor who has sworn at Maria and it was the "F" word too. I wish her well for the future I really do!

Anyway news report for today:

Been to shops to buy drink.
Got home put on music.
Canceled rent on current flat.
Placed drink in fridge.
Tonight we drink and be merry.

That's it for me today. I think I have to do more..... Oh yeah, start packing! This time next week will be manic. I can't decide what music to listen to....Go old school me thinks.
pixies - where is my mind

Wish me luck.

Stay well,
Dave

Grumpy old Dave.

2007-11-14T18:03:00.000Z

I am so sick of telephone sales people. I have set up my telephone for the new address in St Annes....The telephone company asked if I would like our name in the telephone directory with the number listing. I said "no way" as we have had quite a few callers trying to sell us crap at this address. The annoying thing is they tried to sell me a credit card during the call. I said "No thanks" and completed the call. The good news is my Internet connection should be set up a week after we move in.

After I finished the call I rang the cable company I use and closed my account.... They tried to sell me a new cable agreement.... I told them "No" and hung up. As if by magic the phone rang. I picked up and I had a call centre perp offer me a credit card. Again I told them "NO" and hung up.

You think that would be it wouldn't you...... I have had three further calls trying to sell absolute crap and one call for a survey on insurance policies. I also got a call 5 minutes ago and it went a bit like this:

"Hallo, can I speak to Mr Warryiorrrr" The Indian lady said Getting my name completely wrong.
" No.... He is dead. He died this morning. Please stop ringing its realy upsetting"
"Oh I am so sorry..."

I hung up here in case she tried to sell me something. I haven't had any others...Yet!

I just hope our telephone company doesn't give our new number out. I have never been a grumpy old man before. I think this has been brought about by yesterdays estate agent visit. The people he showed around were younger than half my age. In fact.... If you added the age of the new kid's together, they would still be younger than me. They looked about 12 years old. In fact I think their mother came with them.

I have to calm down before Jen gets home. Jen is six years younger than me(yes I rock!) and I don't want her to get the wrong idea when I have my speech about kids "nowadays".

I am a grumpy old man. When did that start?

Stay well,
Dave

Ok maybe 2 months is an over statment....

2007-11-13T14:39:00.000Z

I could not live without the Internet for two months... It will not take that long. Don't put me in the dog house....

Maybe you should if Seasick Steve is there! Amazing!!!!

I really can't wait to have a couple of nights with my dad's music collection. Guitar at the ready and beer in hand. Just add curry and Beer and watch the music flow.

I now have the full address for the new place and the phone line will be setup for when we move. That does mean the Internet won't be to long after that......Let us get settled 1st eh! I was thinking a short holiday if you don't mind.Hehe.

Enjoy Seasick Steve.
Stay well,
Dave

Two weeks left in Manchester.

2007-11-12T07:34:00.000Z

Jen seems to be coping with the stresses of moving house with the greatest of ease. I am very thankful for it as privately I think I am the one with a stress issue. We get one problem, I worry and act as I have a problem and Jen sorts it with a smile and a well thought solution. The same goes in reverse but less frequently. We make a great team and I love her very much.

I have the housing agency coming round this afternoon to show our flat to new perspective tenants. She escapes the horror by going to work and I am jealous. As if it's not bad enough not being able to get up and let them in we still haven't packed. The flat is clean and tidy but I am slightly embarrassed at the fact we haven't anything packed at all. Its still our house after all! It doesn't look like we are leaving and won't give good impression. Well.... Would you move into a house with people you don't know already living there? See.... I stress and Jen would be able to deal with this if she was here. The bit's I do well at are the small things. I will have a fresh pot of coffee on this afternoon so the flat smells like a coffee shop when people come to view. It makes people feel welcome and they can see themselves living here. Yes I am doing the estate agents job but I think it will smell nicer than a smokey den than I usually live in.

Do you have to give good impression to people who you will never meet again? It's common courtesy after all.... How very English of me!

When we move we won't have Internet access for over 2 months so my updates will stop for some time. I can't wait to unpack in St Annes. It will be a true retirement for me. Peace and quiet. Fresh air, love and happiness.... I won't know what to do with myself. Still got a few things to do here before I go and I can't wait. I will be updating before we go but as you may understand we are going to be busy so they will be few and far between..... I'll be back.

Stay well,
Dave

Today has been so hard.

2007-11-06T14:59:00.000Z

I am now left handed.(joy!!!) I am normally right handed and its quite confusing! Strange thing is..... My left leg is dead and drags on the floor.

My life in a zombie movie eh!

I have been out today, to the bank and to the shops. That may be the reason for being tired and the rubber limbs. My ex job used to be in a call centre for a bank. The same bank that is holding my pension. The same bank that holds my money and my credit card. So many forms to fill in to get excess to said money. I have a feeling its going to get harder from here on in. Lets see eh. 2 weeks till we move.

Stay well,
Dave

Anxiety, Anxiety, Anxiety.

2007-11-05T07:05:00.000Z

An old trouble on sleep, showed its ugly face last night. Worry/anxiety about money. I still haven't received redundancy payment yet. It's money that we need to get up to St. Annes. The mission of contacting an old job is going to cause some trauma. I have been thinking of going back to work if the payment doesn't come soon ............. Trauma upon trauma. I think its just the waiting game. I hate waiting for things I have no control over(I know, I know!). It's the sneaky thing's, the hidden charges, the repeat of monetary difficulty. I don't need it. Not now. Not ever...... Do any of us?

The 'thing' is, I know I am worried for no reason. Just the wait which is worrying. If it is effecting my sleep its a big thing. I just want to retire in peace. I just want to be beside the sea side....Always a smile in the face of adversity. Dam me!

Stay well,
Dave

Into the third year we go....

2007-11-02T09:56:00.000Z

Yesterday saw the anniversary of my diagnosis. If I hadn't been then I wouldn't have met Jen. I wouldn't have met all of you guy's.... Life and the running the daily event's eh. (Way to look at the bright side Dave!) I don't think I would have jumped out of a plane if it wasn't for Kim. I don't think I would be the man I am today without ms.....How weird eh. So many good things have happened but I still have ms. Jen was great yesterday. We had such a great day. She makes me feel like a million dollars. I am going to spend the rest of my life trying to keep her happy.

First things first. The move! I hope it goes easy. I may be away for some time.

Stay well,
Dave

Tomorrow is the eve of my ms birthday.

2007-10-30T07:34:00.000Z

I think the word is penultimate or something. Anyway I have to start today with classical music as my last update may have given the impression that I don't like it. Well I do like all music. Especially Vivaldi. Well its more of a love for Vivaldi. Its the earliest form of rock I have ever listened too....OK I will show you.

Nigel Kennedy, Vivaldi - Winter I

The rest of Vivaldi's winter is quite beautiful. But I hear a cry of "How is that linked to modern day ROCK Dave?". Well.... Apart from Nigel's fight to make classical more punk.(Yeah right Nigel!) Have a listen to this:

Children of Bodom

Played on two axe guitars! There is no rock guitar which says rock more than the axe. It sounds great. I thought that showing two tracks would do it. I could do more.... But you get the idea.

Stay well,
Dave
(Vivaldi rocks!!!!!)

The road to acceptance.....

2007-10-27T07:27:00.000Z

This update is going to be difficult one to write(right hand vibrating and all!). Some may agree, some may not, but I will give it a try. I think it may differ for some but here is my way:

1. The 'what' factor....What is it. Tell me more.
2. Denial..... That's not what is happening to me. "I am fine...Really!"
3. Anger...... You have to be joking. Who is responsible?
4. Bargaining........"What if I did this......"
5. Depression...... We all know the dark sides to this.
6. Acceptance..... Read on.

I have thought about this for some time now. I think, in writing this, I have completed my emotional ricochet to my own way of acceptance. No one can tell you how your going to do it. You just will. The alternative doesn't bare thinking about. My main aim now is to be happy and surround myself with people I love. Ohhh and have lots music playing.

Unkle - Eye For an Eye

I quite like that. After the classical music bit at the beging it's pretty cool. Hope you enjoy. Hippy Dave rules!

Oh and Kim's blog has changed too. Check it out here http://www.restperiod.ca/
Stay well,
Dave

Sorry I have been away for a while...

2007-10-26T11:45:00.000Z

I have told you about that before yeah? Well not much to report really. I have just bought 3 tickets to see the Spice girls......Not for me, for Jen and a couple of friends. She looks so happy! No more to report on the house move front. 1 month on monday. I cant wait to get going.

I have been watching a lot of TV. Scrubs...Thats the reason for this:

The Polyphonic Spree - Light and Day

Anyway... My left hand is tired typing on its own(right hand still not quite right yet) and its time to watch something on TV. There is some new photo's on my other blog so please take a look.

Stay well,
Dave

The happy ever after....

2007-10-20T15:31:00.000Z

If I start an update with the words "Sorry for not updating" it generally means that I am having a life and getting on with things. I have just returned from St Annes with Jen after looking for a place to live. We have good news. We found a great house and we move in a months time! We had such a romantic time walking down St Annes promenade and making plans for our future. Its time to live in the happy ever after.

This tune is for my younger brother who is a secret, little budding "chav" in rock clothing.

Robyn 'With Every Heartbeat'

We forgive you P.lol.

I have a few things to sort out over the next few days and you may find a few days of update missing over the next months. Don't forget when we move the internet will be missing also. I will try and keep you all advised. We are happy so don't worry about us.

Stay well,
Dave

What does today bring?

2007-10-11T11:12:00.000Z

"Everyday is Exactly the Same" by NIN

I have been thinking of how to explain an ms day to Will who is coming later today. So this video seems to cover. Every day is the same. I lay on my back watching TV or DVDs. The only glimmer of excitement in my life is Jen. Like a glimmer of hope in so much misery. The pain is the same every day. Its almost murder to feel this much pain. But even in Natural Born Killers there is an underlining love story. Like Jen and myself and my pain and embarrassment of being disabled. We still have love.

Nah......We will drink and get on with catching up........Should be fun!

Stay well,
Dave

I am not disheartened by it just work around it.

2007-10-10T08:36:00.000Z

Falling From Grace - Lucrecia Crescent

Great tune. Not sure about the game but it looks good.

I am having a lot of trouble with my right hand. Difficult to write a birthday card when you hand is vibrating. I have started using my left hand for mouse control. I am getting quite good. Can't play computer games yet but I can work around any issues on a standard web page. I would class it as left handed rather than ambidextrous(you need two hands for that Dave!!!). I am not disheartened by it just work around it. Isn't that what we have to do every day?

I have an old friend coming round this week and I can't wait to see him. I haven't seen Will for ages. I think its going to be a couple of drinks with an old mate. He isn't that old!lol.

Saw 4 is out October this year. Hmmmm.

Hope you enjoy the tune.
Stay well,
Dave

Happy birthday beautiful.

2007-10-08T13:05:00.000Z

The most beautiful woman in the world was born on this day (((clears throat)))..... 21 years ago today. I love her so much, I hope she has a really good day today. I just hope to see her smile.

Happy birthday Jen,
I love you.

Stay well,
Dave

Is blogging no longer cool or something???

2007-10-03T06:33:00.000Z

I go away for a couple of days and return to the desert of blogging times. There seems to be a drought of updates not just from myself, life gets busy for the wheel'led' man. I return with a new life around me. Some neighbors have moved out. Some still here unfortunately but hey ho on we go.

I still walk around my home with a wobble in my step. Holding on to every wall and every piece of furniture without wheels with Spiderman agility. I still live in the pain bucket that ms brings. I am still in love with the early riser that is Jen. We are still looking for a suitable place to live in coffin dodger city by the sea. I still haven't finished 24 season 6(oh I bought it by the way) and I am deep into the exciting series. And finally....I am still here!

I had an interview with a retirement specialist from my old job. It appears that my money is going to be credited to my bank account with the money they are going to pay me for making me redundant too. I will have enough money for our move and Christmas as well. Talk about falling on your feet! I think the Karma owes me this week for the illness I have had the last two weeks.(My turn to be knocked over by a car tho I guess)

I have a week planned to search for a place to live in St Annes from the 15th. I will be traveling there on my own(Jen joins me mid week) to search for a place so wish us luck. I cannot wait to move. We are settling in together and it should be up there or we will never move.

At least I am no longer full of snot.
Stay well,
Dave

I must be on my period.

2007-09-27T11:01:00.000Z

Emotional roller coaster that is today. No pain that's out of the usual. Just an emotional leper. Music can make me cry with memories. Art can shed a few also. Give me a pair of breasts and call me Mary. My guitar is broken. I need a new one and Christmas can't wait.

If that's not enough......24 season 6 is out Monday in the UK. What should I buy first? I can only afford one at the moment. 24 is one day viewing but a guitar is for life. Either way....... I am going to annoy Jen.

I did planned on writing a piece on DVDs and how the second films are terrible but I think I want to curl up and watch TV and eat chocolate. I must be on my period.

Stay well,
Dave

Jen's better and back at work!

2007-09-26T10:46:00.000Z

Me....still sick as a dog. It appears if you don't have ms, its a 24 hour thing. If you do....Then your knackered. Its OK I am not that bad really. I am here and smiling. Spending time with Jen is always a good thing for my mental state. I know a day on my own listening to some good rock will shake it.....
Hundred Reasons - I'll Find You Video

I am feeling better already.(Who am I kidding?)

My mother and father are back in the country and back in St Annes. This has fueled the want to get back there as soon as possible. To hear my mam's voice has woken me up a bit. I am glad they had a relaxing time. They needed it and I am sure my dad will update his blog soon.

Need more rock
Hundred Reasons - Falter

Better!

I want to have a word about sequels to great movies and how bad they can be. I will save that for tomorrow. But I will give you a 'heads up' now as it WILL be painful. How can great movies be followed up with a crap sequel? Saw for 1 Butterfly effect for 2 and a the hight of upset for me is my latest purchase of 28 weeks later the sequel to the greatest zombie movie in my collection of zombie movies.

Anyway...
Stay well,
Dave

I am well(ish) but Jen takes a hit...

2007-09-25T09:29:00.000Z

Jen is wrapped in a duvet lying on the couch. The common cold runs amok in this household. No fun at all and I wish I could help. Sympathy is just bouncing off her. I did the only thing that I could and called into her work for her. I am used to calling for myself and found calling for her easier than I did for myself when I worked. I hope she is going to be OK. The illness gets pretty bad in the 5th hour but she should be good by tomorrow morning. Just hugs when she wants them is all I can do. It feels difficult for me to say I am well when I still have the obvious disabling side to ms. I am better than I was, seems to cover. I just wish she was better.

The thing is....She is still beautiful and I feel lucky to be with her. I hope she gets better soon. I am going to busy for a while so we will speak soon.

Stay well,
Dave

I have the plague...

2007-09-21T13:13:00.000Z

Snotty doom in abundance. I haven't had a cold in ages. Its flu like and gross. I need more rest. Sweat and snot is me. This is horrible. I even have sensitive skin around my nostrils from blowing my nose too much. OOOHHHHHHH
GGGGAAAAAWWWWWWDDDDD!!!!!!!!

Music to describe how bad I feel.....Think of something bad and add here:

Stay well,
Dave

Acoustic lovleyness

2007-09-20T13:28:00.000Z

Radiohead-"You"

I have to get back to music and I hope this helps 'you' too. That being the case....Have a bit of this:
Afro Celt Sound System feat. Sinead O'Connor - Release

Music always makes me feel better and Afro Celt reminds me of my mam and dad and a good curry night. I can't wait to see them. I miss them very much. They return to this country on friday. I know I will feel better then. For now....Music and slight insults from my sister in law. I will get a real homosexual to meet my sister in law soon. Then she will learn about bitcheness!lol.

Stay well,
Dave

My favorite advert...

2007-09-19T13:02:00.000Z

I have been watching a lot of TV recently. Above is my favorite advert and my favorite chocolate. Nothing much to report. Haven't seen M for about two weeks and the peace and quiet is beautiful. Spending time with Jen is great I love her so much.

I will be back soon when I have more to report.
Stay well,
Dave

Busy day compleated by 09:15 AM

2007-09-15T12:19:00.000Z

Paranoid Android - Radiohead

I love Jen. I love living with her too. My day starts a bit earlier but I love living with her. My day starts 8 hours earlier than usual but I still love her and living with her. I have a new respect for the morning. I don't like it but I respect it. I do miss working and I think that's where the respect Lie's. I went out this morning and shopped as the stores opened and I had a great time. No cues. Open floors without people getting in my way, it was fantastic. Fun even. Of course I shop like a man and it went fast.

A 'man shop' is.....We think about what we want and where to get it. We have already planned the route in our heads before we go. We spend no time window shopping we just know where to go and what to get. We enter the shops in order and go directly to the individual items without looking at things we don't need. We make our purchase and leave. That's a man shop...Well OK that's how I do it. That being the case I finished my shopping within 15 minutes. I am not flying the flag for men in a dispute or anythying. The whole men verses woman dispute is pointless in my eyes....Women always win that. I am just saying I finished my days hunting early and came home. I just wish everything I plan was that easy....That is just not how life works though eh!

Happy Saturday. Stay well,
Dave

I know I am getting a bit lax with the updates but...

2007-09-14T14:00:00.000Z

The past week has been traumatic. I am happy, I am sad, I excited, I am in love, I am in relapse, I am happy, I am sad, I am vibrating, I cant walk, I am disabled, I am in pain....I am.....I am... Yeah I am.

The Fray - How To Save A Life

Then I watched this and felt better. I love Tomas Newman.

I can't wait for Jen to get home.

Stay well,
Dave

A bad weekend turned good.

2007-09-11T14:30:00.000Z

We found out how to turn the bell off! Well Jen did anyway. It turned out that we had a really great weekend. No bell ringing and, after a day of worry on my side, we sat down and talked. Jen the saviour. I love her so much. I can't wait to get her away from Manchester so we can spend some real time together. I would do anything to make her as happy as she makes me. I have recievd the first paper work that will help us find a house in St Annes and I hope we will find one soon.

We also went to see my nero on monday. Very short visit without seeing my nero at all...I must have been looking ok....Yeah right. The nero team has a new leader and it was more like an interview really. She confirmed some details and wished me well. Hour waiting time but the 'hello' went down well. We advised on the move and she told me that the nearest nero would be in Preston.

So in short....The weekend started bad but finished good in Jens arms.

Stay well,
Dave

She is now invading Jen and me time.

2007-09-08T10:54:00.000Z

Last night was horrific. Not only is M ringing the door bell during our time together she is leaving notes for me too. Its scary and enforces my need to get away from Manchester. 1st thing this morning we checked out legal advice. I need a restraining order against her. She is scaring me. The really bad thing....Its effecting my health. I am wobbly and its extremely painful to fall over. What must Jen think of me? Next time I swear the police will be involved. I just want to get out of here.

One day,
Dave

God rest him and dam cancer.

2007-09-06T07:31:00.000Z

Brings many a tear. I will miss him greatly!

Stay well,
Dave

Home sweet home

2007-09-04T07:19:00.000Z

No sarcasm with the title. It really is sweet. To 'hug up' and watch TV at the end end of everyday is absolute bliss. Happy happy joy joy!

My routine has changed, I spend money with purpose and we are sick with smiles. My flat, sorry our flat, is clean and no longer smells like a single man lives here alone. Sleeping routine has now changed and monitoring fatigue will need closer attention but I think the change is working.

I have a new ailment on the ms side. Headaches. It feels like a cold metal spike is being rammed through my head, left hand side pushed down from the top of my head towards the ground. Owww.... but easily dealt with pain killers. I don't know about you but I am the type of person who reacts when its really bad and I don't pre-empt pain. I won't take pain killers every four hours in the hope that it stops pain. I hope that makes sence to some. It's better for your liver that way anyway. When your a drinker like myself you have to look after your liver.

Talking of ms things...The greatest research of the past ten years has been published. All in the wake of my life development I have still been looking. IZ7-R is a protein whose role is to guide the actions of one type of immune cells (T-cells). The MS-related version of the protein may contribute to MS by guiding those immune cells to attack the nervous system. I am not going massivly into it but ms is not something we pass on to our kids but it is something that my genes have been effected by. I will let you do your own research on this. Go on....you can surf the net. If your interested take a look, its very interesting.

I just have to leave you with one thought:
If you spend all of your life working out why we have life, then arn't you missing out on life itself?

I am going back to enjoying life. Stay well,
Dave

A day to myself.

2007-08-30T10:42:00.000Z

Today, so far has been great. I received some of the greatest comedy in my collection yesterday. Its the beginning of the Woody Allen series which holds:
Annie Hall
Bananas
Everything you always wanted to know about sex(but were afraid to ask)
Love & Death
Manhattan
and..
Sleeper

So my day is going to be full....And horizontal. Anyway....

Stay well,
Dave

I have a new Claire

2007-08-29T06:23:00.000Z

New wheelchair has been delivered and she is so pretty.Hehe. I can't wait to use her but I am still awaiting delivery of a virus killer for my PC. As soon as I get some functionality I will be back. My typing seems to be a bit better but I am using my left hand more.
Its been a year since I did the paracute jump....A year! Hmmmm.

Anyway...

Stay well,
Dave

Confined to quarters.

2007-08-24T17:15:00.000Z

Had an accident today which broke Clair(the wheelchair!). I have stairs to the entrance to my house. Three stone stairs, concrete to be honest. I was intimately introduced via gravity and Elvis. My knee's gave way after a trip to the shops. I don't think the heat helped today. Anyway...I got to the top of the three steps pushing Clair and my shopping and I got to the doorway. Balance ran away from me and I pulled Clair and all sundry on top of me. The following back flip should have been recorded for a Bruce Lee movie. With style and elegance I bounced like a beach ball filled with sand a pulled Clair to the ground with the hope that Clair could fly. Instead I pile dived Clair and broke the vertical bar to her seat. Shopping went flying and bounced down the drive way. Following my beer and food, I bounced shouting expletives as every limb bruised and scraped the four foot to the pavement. I am OK. Clair needs extensive surgery and will be away for a week.

It does mean I have to stay here and not leave the house till she returns(the dirty stop out bitch!). So I, like the title suggests, am confined to quarters. Shit!

Stay well,
Dave

Muddling theories.

2007-08-23T07:14:00.000Z

I have always been someone to be thinking of the bigger picture. Maybe its too much Star trek at an early age or delusions of grandeur but I have an idea. I think I know why we have ms. I can spend the rest of my life proving it, for it would take the rest of my life to prove it or I can have a life and enjoy it. Strange eh! Would knowing for certain make my life complete or any better? Who am I to reason why?

I have been here before. I started my research blog under the same premise. I came across an area that may give hope to some but I don't wish to diminish hope in others or discredit(as if I could) other peoples research. I don't think that is right to attack other peoples hope for cure. This is the reason for my research blog coming to a 'stale mate'. I have been continuing my own research but..... I think we all need to find our own answers, our own way. I have no right to find it for you.

I will put forward my theories if requested but I believe you may have to find you own also. The mental trials of ms eh! Annoying isn't it. I have some life to live.

Stay well,
Dave

Ma' lady is here.

2007-08-22T13:08:00.000Z

Jen has moved in. I find less shoe's than I thought would be coming with her. Needless to say I think there will be more in her future. I am the happiest I have ever been in my life. To wake up with her every day is like winning the lottery for breakfast...Every morning! I feel really lucky. It does mean that my blog goes on the back burner as life gets busier. I hope to get here as frequently as possible and update you all but I can't promise you much untill we get settled. I have a visit to the hospital next month with my nero. Jen will be coming also.

Anyway....

The past week has been really busy. I have travelled to St Annes on my own and I am still in recovery. The added Jen move has kept me very happy and very busy. I do have 1 thing to do while I am here. Have a listen to this:

Seen a live show over the weekend which rocked my socks off!

Stay well,
Dave

30 years since the kings death today!

2007-08-16T10:05:00.000Z

RIP the burger eating man.

Stay well,
Dave

Sorry its been a while but I have been busy!

2007-08-15T11:46:00.000Z

A few things have happened, good things, I attended a leaving party for Jen's parents. I met 60 members of Jen's family at the same time. I had a great time. I also got the opportunity to ask Jens father for Jen's hand in marriage.....Over the microphone.....Git! To be honest I was so drunk he could have asked me to sing and would have. It was a great night. Happy daze for sure. Hehe. Jen got so drunk she already had a day planed for the wedding and told everyone....Including me to my surprise!

Jen moves in on Tuesday and I can't wait.

Oh she cut my hair..... Before:

And after:

Better I know but...I am a rocker dude! Good job I love her.

There are many things I have to report but I will let you recover from the scary pictures for today.

Stay well,
Dave

1 week till Jen moves in. Her first mision is to cut my hair!!!!

2007-08-09T13:13:00.000Z

I have been waiting 2 days to type this.(Maria giving me no free time at all!) I have been busy and recovering from Jen's last visit. I am massively in love with her and I try my hardest to be entertaining(its hard work for someone so dumb so forgive me!)and loving. Physical work as well as mental so stop it! I have never been in love like this before. She is amazing, intelligent, sweet, gorgeous and the love of my life. I am so happy with her. Every joke that I have is now funny again because she laughs. Every film I watch with her is better because she is with me. I know it sounds sick, I have been there and seen it before on other couples and I have wretched, but being on this side of things.....Its the best feeling in the world. Jen moves in, in a week and I can't wait.

Every day I spend apart from her is painful and every day she is with me just gets better and better.

OK the reason why I have been away for a couple of days is because of Maria my next door neighbor Yeah she is back! Not drinking. I think she is lonely and just needs someone to talk to. I know she will stay away when Jen leaves here. I am not one to wish away time but I can't wait for Jen to move in. The added benefit of no stress will be fantastic.

Anyway M will be back to watch more DVDs from Family Guy collection in 5 mins so I better finish up for know.

Stay well,
Dave

Restful period....

2007-08-06T13:02:00.000Z

It seems like I have nothing to report. My pain is monitored. Its getting warmer and the rain seems to have stopped for now. Sun is out and shining like it has a purpose. Too warm for my liking but dry so can't complain.

My cool neighbor from my old flat came down a couple of weeks ago and requested to borrow a pain killer as he had a monster head ache. I gave him a warning before giving him a Co-Dydramol and advised him to seek medical advice from his GP if the sinus pain persisted. I attempted to scare him by saying "Don't drink with these" the are 500mg after all. I also told him that the "Co" is for cocaine so dont do more than two at any time. I built it up so he would not ask again. I built it up further by saying "split one tablet in two and take one half just in case." I am not a doctor after all. He reported back the following day saying his migraine was clear in 30 mins and no medication he had ever taken before had done that from his GP. If he ever knew the truth about what I gave him he would not be very happy about it. The placebo effect of caffeine tables eh! Sort of back fired on me when told other neighbors I had a drug addiction which caused ms in the first place!

What you get for helping people eh! Dave the druggie! tut.
Jimi Hendrix RARE 67-03-07 Belgium - Hey Joe Tienerklanken

Stay well,
Dave

Link for RTL1000 have a look.

2007-08-04T08:47:00.000Z

Here it is!!!!!

Hmmmm good for mice so far! Joy!(Sarcasm doesn't come over does it?) Only a 10 year wait eh!

Msn has given me a 2 gig storage space for my emails.....Just after I had cleared the inbox too. Admin has never been my strong point, its taken over a year to sort out what I had. Maybe this is a starting point for sorting out my time and getting my "Admin" right. Or maybe this is a starting point for getting swamped.Hee.

Jen is here tonight so I am off for a rest. Save my spoons.

Stay well,
Dave

Pain Vs pain

2007-08-03T11:28:00.000Z

Woke up this morning with the after effects of muscle pulling in my back. It feels like a recovering sprain this morning. I feel comfortable but numb(sorry!)

Pink Floyd The Wall - Pink Floyd - Comfortably Numb

I had to get it in some how! After the last Pink Floyd I felt I had to another. Dam my eclectic soul. I still haven't fixed my guitar yet. Not had the time too. I think its going to be after the move. So many things to do which I am putting off.

Had a strange feeling over the last few days. Two days ago I burnt myself with a hot(sort of had to be eh!) tray I took out of the oven. It has left two burns on my left arm. The reason I bring it up is... It hurts less than my back does. Weird eh. I haven't been able to describe ms pain before. It hurts more than a burn? Is that right? How many levels of pain is there and where does my ms pain fall on that scale?

OK I am scaring myself. Maybe getting a tattoo will be easy and virtually pain free in comparison..

Pain verses pain eh!
Stay well,
Dave

Ok time to spill the details

2007-08-02T09:09:00.000Z

We are engaged!yey! We have chosen to have a long engagement. About two years...About. We have alot to do over the next few months so wedding plans will be on hold until we get re-nested further north. Very very happy! Happy daze!

I just want to keep her happy every day. The happier Jen is, the happier I am. My thoughts turn to my health and my well being when she isn't here. Especially when I wake up with a back pain. It feels internal. Not my backbone more like my kidneys or liver. No I haven't been drinking, it's not hangover. It hurts. It feels like I have strained a muscle. It could be the fact that we are eating healthier and my body can't deal with it. Its used to pizza and junk food so maybe thats it!

Today is going be a day of lying down and watching TV. No outings planned today. That being the case.

Stay well,
Dave

One ring to rule them all.

2007-07-30T14:25:00.000Z

One ring to show our love,
One ring to bind us,
One ring to seal our love
And forever to entwine us.

The above is written in elvish on the ring. It looks fantastic on Jens finger. I love her so much.

Stay well,
Dave

Time on my own while Jen has gone out,

2007-07-27T17:29:00.000Z

First I just want to point out that the sombre music is nothing to reflect my state of mind. Just some more music from my collection which I thought you might like. Enjoy.
Incubus - I Miss You

Patti Smith - Because The Night

Pink Floyd - High Hopes

A Hippy life for me. Hope Jen is prepared for it.

Stay well,
Dave

Maybe time to get my hair cutt!

2007-07-26T11:23:00.000Z

KULA SHAKER-"HEY DUDE"

For the 3rd time in the past six months I have been mistaken for young lady. The look that I gave the young lady this morning told her that I am a man. If I hadn't shaved this morning she would have known staight away. I know Jen doesn't like facial hair on me but I have never grown a beard before and I am tempted now. I know I have a deep voice and I think that will do for now. Dont treat me like a woman when I am a man!hehe. At least they didn't think I was an old woman!

Still resting up so I will update later.

Stay well,
Dave

Day before Jen is back.

2007-07-25T10:57:00.000Z

I know I want to be working properly when Jen gets here. So today is a day of rest without any stress(I know the minute I say that it's not going be stress-less!). Today I am not going out or doing anything physical apart from having a shower. I did get a new watch through the post this morning. There was a mass of packing for this small sports watch. So much cardboard I think a tree died to make it.

Its strange how much management you need to manage your "Awake time" with ms. I find it hard to explain to someone without this disease. You do too much today then tomorrow is broken. Yeah that seems to cover. The thing is...When Jen gets here we will probley watch TV anyway. Sat down watching TV or DVDs doesnt take to much energy but if we want to have an adult conversation then today will have to be restfull.At least now I can time myself eh!

Right I am off to rest now. My right hand is a bit better and I will get back to typing again soon. I will be back on msn messenger soon so speak soon Jaime.

Stay well,
Dave

How much excersice can a ms'er do?

2007-07-23T12:43:00.000Z

Jen is slowly moving in. She had her own tooth brush here for quite some time. She has had a few shower things here for some time too. A hair dryer, deodorant and all the little things have drifted in above the last six months. I have felt that I have been needed and loved every time she brings something. Its kinda sweet to be needed. The last thing she brought round is an exercises bike. So how much exercises can I do? Will it effect my health any more? I know my arms are reaping the benefits from driving Clair. Maybe its the same for my legs too!

I need advice on this. Please do leave a comment if you are in the same way. What do your Doc's say when you have ms and you want to work out? I know it will be good for cardiovascular heath(Yes giving up smoking will help too!) but how much can I do before it works against me? Everytime I have asked my GP he sort of side steps the answer for long term benifits. Will I be making a huge mistake by being 'pro-active' and riding the bike or will I be racing toward a painfull existance? Yeah doing to much must be bad for fatigue but I have not read one report thats say's 'Don't do it'!

I was thinking of doing 1 hour a day listening to my MP3 player. After a week review the difference. What do you think? Let me know! Hmmm
Survivor - Eye of the Tiger

Had to be done. Sorry.
Stay well,
Dave

OK OK I will stop "dis'ing" Harry!

2007-07-22T18:02:00.000Z

After my update yesterday I fell over 3 times......IN MY WHEELCHAIR!!! Must have a budding wizard trying to curse me or something. The thing is.....I am all ready cursed with ms so leave me alone!!!!

I am not one for believing in fiction but that's a bit much. Sorry.

Jen came over yesterday and stayed over. Can't wait for her to move in. I love her so much. She rocks and keeps me level headed when things get to much. She returns on Thursday. Jen hug's rule!

Anyway speak tomorrow.
Stay well,
Dave

Harry Potter release day...

2007-07-21T08:51:00.000Z

How does this impact my life? Well....Its has been wet in the UK yesterday and will be more wet and soggy tomorrow. Record levels of flooding in the south of the UK and suspected up and coming in the north where I am. I don't like Harry Potter. I haven't read any of the books but I have seen every cover held by a passenger sat in the disabled area on public transport. Buses, trains and coaches will all break loose with people of all ages reading these books and cutting all travel for disabled patrons! As if the rain and flooding wasn't enough.

I am glad its the last book. Once everyone has read the book(I suspect in about 1 month!) I might be able to park my wheelchair'ed bottom in the area provided for my wheelchair. I hope its a good book. I hope its enjoyable. I hope your not too engrossed in it to notice the disabled bouncing around the bus because they can't sit where your sat! Please look up from your book if traveling! If not...rip out the pages and use them to soak up some water from the overflowing rivers and lakes here in the UK.

Stay well
Dave

Another day of silence. Well sort of!

2007-07-20T12:21:00.000Z

Metallica - Orion/To Live Is To Die/Call Of Ktulu (Medley)

Had a day of music(Metalica specifically) and searching the Internet. I have been invited to join another website. www.facebook.com I saw the site on the news this morning as people have been placing to much personal information on it and there are to many 'bad people' out there in the ether who will abuse it. Shame as it is a great site! I have met up with a few old friends and typed out a news report to all.

My right hand is having difficulty today.

Maria has been round a couple of times today. I am pained by her trauma's. Every time I get involved with someone else's life that way it, to use a Jen'ism, 'Negs me out'. I wish I could just click my fingers and solve her problems. Second to getting rid of ms of course but you know what I mean. Any stress kicks my ass I don't need it from other sources. I have my own stuff to deal with.

Right back to music and relaxing before Jen gets here tomorrow. Can't wait for a Jen hug.

Stay well
Dave

Strange days!

2007-07-19T11:55:00.000Z

Its been a strange day today. I requested the day off from Maria saying I need a day to myself. I said I want to watch Sex in the city that I bought recently seasons one and two. I thought about painting or drawing but senseless TV works in my favor every time. I did pick up my guitar and strummed needlessly with no sound on the six strings. I resorted to going to the mall and I was pleasantly surprised at the skill that I have on Clair. My arms are rested and I have the speed that I had before. With this new found strength I had a strange feeling. I think I want to do a marathon to raise some cash. Should I? Could I? I would need a new Clair but I think I could do it with some working out. I think I should work on the moving house thing first maybe. I think staying away from Maria is good for my mental health.

I know Maria will read this one day. I don't want to give the wrong impression. I do consider her a friend and I wish her well....Honestly! She is strange and a bit of a mad person but I think we all are in are own way. I am just thankful with some time on my own I think. The time between Jen visits should be filled with quiet reflection and not dealing with trauma of someone else. I love spending time with Jen and I know she is nothing like Maria. I could spend all my life with Jen. We will. Although I like the time in between visits when its my own. I love Jen and I wouldn't miss the quiet time if she was here all the time.

I think I just want to get out of Manchester and the Maria thing is just the icing on the cake.

Anyway back to Sex in the city and thoughts of wheelchair marathons.
Stay well
Dave

Missing art outlets and Jen.

2007-07-18T10:20:00.000Z

I have been watching TV and DVDs and doing nothing else. My guitar is still broken and I need an outlet. I have not listened to as much music as usual as I have been busy. Maria is back in full flow. No drink just a friend who needs to use my phone and wants to talk about her problems. I don't mind. I have my own problems but I don't mind. All of these compounded issues are making a huge hole in my music time. I miss Jen. Just to hold her will make me feel better. If I had my own time at the moment I know I could throw myself in to painting or drawing or photography but I am doing the neighborly thing. I can't wait to move out of here!

It would be better if I was working towards the move. I will jump on to it today! I have at least an hour before Maria comes back from the shop so this is a brief update.

"Life moves pretty fast. You don't slow down and take a look around you may miss it"

Stay well.
Dave

Happy and awaiting happy change.

2007-07-17T20:12:00.000Z

Sorry I haven't been updating much recently. I still have some issues with typing. My right hand has a few spasm issues. Just like my legs and head. I am happy. I am deeply in love with Jen and I am still smiling like a Cheshire cat. I do hope I can make her as happy as she has made myself. We have a lot of planning to do over the next few months as we are planning to move in together. I can't wait!!!

I know I will be a lot happier in St Annes. Manchester has to many bad memories for me. Its a great place...Don't get me wrong, but I know St Annes will be better for me. My family is there and won't be an hour away if anything bad happens with my health. My brothers are big enough to pick me up if I fall. I just hope Jen will be happy too. Jen always sends me text messages on my phone to keep me happy. When we move...She will be there and will not have to. We are going to save a fortune in mobile phone charges alone.

OK I have written this with my left hand and I am now starting to get tired. I will leave you with this:

"The more we are willing to risk, the more alive we are. In the end, as we look back over our lives, the less we have to regret not doing, the happer we are."

No regrets with Jen. I love her so much.

Stay well
Dave

I have a new phone!

2007-07-14T14:34:00.000Z

The trouble with my land line is now resolved(I don't know if I told you I had trouble but I did) BT came out and the engineer had to climb a post outside. The replacement telephone is fantastic. For the first time ever I have an answering service on my land line. I need to record a message for it. You know:
"Hi you have reached the Dave line leave a message after the tone"

The thing is.... I have resorted to "Hi this is Dave, do your thing after the beep!" and it doesn't feel quite right. I heard that on 3 and a half men, he uses Charlie but the idea is the same. I think I need a better one. Any idea's?

I will ask Jen when she gets here tonight. Please do leave suggestions and I will see what I can do.

Blondie - Hangin' On The Telephone

The oldies are the best.hehe! I was two years old when this came out!

Stay well,
Dave