Friday, November 26, 2004
so angry!
I have just tried to walk the half mile to the nearest shop and on the way back I had to stop every 100 meters. I sat on walls and held on to lamp posts all the way home. its bad when you see people looking at you like your a drunk. if you manage to fall over you are knackered getting up! I really hope this medication does some thing so i can get back some dignity. (Even my spelling would be good) I hate this f**king disease. not only does it effect every one close to you.....its just a down day! Hope there are some good stories out there somewhere. Hope your all in a better place than me right now!
posted by personallog! @ 3:13 pm  
4 Comments:
  • At 10:23 am, Blogger Zen Angel said…

    I came to your site through Erik's blog, and I'm glad I did. Let me introduce myself: my name is Angel, and I've had MS for eight years.

    I feel your pain, Dave...I also hate this f'ing disease.

    I know you probably don't want to hear this yet (I know I wasn't ready to for the first four years; I am particularly stubborn), but a cane can help with those days when walking isn't so easy. My favorite cane was a gift from a friend in your fair country (wish I could be there now; I love Great Britian), which has a hidden flask in it, similar to the kind Toulouse-Latrec used to carry for years. I found it amusing. I use it to store extra meds, in case I need some while I'm out and about.

    I'm enjoying your blog, and I wish you well. If you aren't easily offended, please come visit me at my blog: www.zenpretzeltrick.blogspot.com/, where I talk about MS, politics, pop culture and anything else I feel like gabbing about. I also have a blog for bad baby names at www.zenbadbabynames.blogspot.com/

    And keep blogging!

     
  • At 7:54 pm, Blogger C. Fish said…

    Do you use a cane or any other assistance or mobility aid?

    I have found that in the last year my canes have become Godsends.

    I emailed you.

    I think the dignity issues are something that affect all of us with this illness. Having to have help getting in and out of my bath, or having to use a wheelchair for the first time during a major flare up was a big one for me.

    This illness does effect every part of your life. I can truly testify to that. There is no shame in this illness though. Those that stare and ask rude questions of us, they simply don't understand. I've had to come to a new sort of patience for people like that, and find it as an opportunity to educate them about the illness. When they understand it, and how it works and what it does, they are more apt to be moved to help do something about it, and help those in need that have it.

    I wish you well.

     
  • At 4:01 pm, Blogger personallog! said…

    I thank you fish for your words of wisdom they are being heard and felt. god and me are not on taking terms at the moment and I feel the blog is a good place to shout out. thanks again!

     
  • At 7:28 pm, Blogger almodiva said…

    I have experienced that exact same frustration. Some months a go I was walking drunk to my classes (graduate student in history, Latin America). SO hard to later teach and keep my composure. Shortly after I suffered an attack and gained my balance. I think that the high dosage of baclofen I was taking back then was making me walk ziggy.

     
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Name: personallog!
Home: St. Annes, Lancashire, United Kingdom
About Me:
I am 6ft 3" skinny and not well. I was diagnosed with ms in 2004 and I would like to speak with others who have ms. I have a want to raise money for ms charities. We have to find a cure for this hell!!!! See my complete profile

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