Melancholy Dave? I think not...well maybe just a little.
My recent visit to my neuro was...well..not great. The words "the level of your disability" and "we can't measure any improvement" were used. So I guess having a wheelchair is not good if your rated by walking.
There is no more drugs the government will give me... Joy.
It looks like I HAVE done them all. No more jumping eh! No more jumping...
Have you seen the legs on that woman! A compliment from a guy in a wheelchair honest.(remember kiss with a fist vid I put on here???. I told you didn't I) I was going to put up 'The dark days are over' by Florence and the machine, but as you all know.... That's not quite right eh. Still no cure. It's a great track tho. Check it out.(My fave band at the mo) Hope you are all well
Dave
***News flash...Dave no longer smokes! Nicotine replacement, Vaporizer but no smoke***
Jen and myself are really happy. A family. We have a dog which act's like she is our little girl so we can say family really. Yes ms is still rampant in my body but it doesn't effect our life to much.... I hope it stays away for a time. I have never been happier and stress free. It might have something to do with this gap in treatment.
I have had a visit to my new neuro who has taken me off Tysabri with earnest and requested I have a MRI to see where the situation lies. There has been no mention of future treatment as yet, so don't ask. He did say that I shouldn't have been on it as I am high risk of developing PML. The whole 'smurf blood' history does not play well with Tysabri they have found... Some deaths type situ.
Well this is just a short note to say hi and to tell you all that we are fine. Happy and married... Just over 6 months.... Yey. I am not leaving this woman if I can help it. I love her so much and it's still getting better each day.
I found my claim to fame.... I knew someone who went on Big brother 7.... And that is it.
I find myself with the thoughts of last year(reading past updates is fun!) and looking at my wants and needs,then and now... To be honest they haven't changed at all. I type with my left hand now with ms restricting my ability a bit more on the right but the focus has changed. Music is still in my life and I want to write more when it comes to a blog. I don't care who reads it... As long as it doesn't infringe on my happy life.
I will be attending my first concert in a wheelchair on Friday and I am nervous. I will have just attended hospital on Thursday for my monthly dose(Tysabri) and I hope I am OK. Will they have a 'special place' for wheeled ravers? Ravers you say...
Yeah insanity comes rife! While I still have breath.
Its been a while since I blogged with regular service. To be honest I think I have missed it. Its a lot harder since my typing has gone down hill. I have a dog which loves gnawing at the wheels on my PC chair and licking my mouse hand during a wobble. Which doesn't help. I have had time to think, which is not always a bad thing. How many people read my rants on here with vigor(doesn't fall asleep!). Does it make any difference... I think the answer is 'No'. Who cares?
Did I start with the idea that I could speak with other like minded people in the same situations... Well yes. The 'thing' is... No one is in the exact same position as me. Life / disease progression. I am happy with my life. Yes it could be better(like have my own house and not worry about renting with a dog!) but I am happy.
I have a beautiful wife and a dog(man's best friend!). They look after me and keep me exercised. I am happy. Could do with more money like everyone else but I am happy. It's strange but true.
I have no reason to do my blog anymore. It was here for me when I needed it.
I dont need to bore anyone else.
I still have ms and there is no cure yet...Yet. I have my family of 3 and they need me. Jen,the dog(Bailey) and myself have the happy ever after and we have no need to type. I hope I won't need to vent in the future but if I do.... Here is where I will be. Just hope Tysabri will keep working for me. I have deleted my research blog so please deleate any links. I will miss you all and will keep this blog open. I maybe back later. Maybe. I will check up on you all at some point. Be good to each other.
Name: personallog! Home: St. Annes, Lancashire, United Kingdom About Me:
I am 6ft 3" skinny and not well. I was diagnosed with ms in 2004 and I would like to speak with others who have ms. I have a want to raise money for ms charities. We have to find a cure for this hell!!!!
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