Friday, January 25, 2008
Just keepning in touch.
Amazing what a difference one 'bleep' can make to a song! too funny!!!!!

Keep smiling and stay well.
(thanks tom)

New start.....

I have just looked over the past year on my blog..... Its a bit of a shock. A small window of time where I can see a lot of changes in me. States in happiness and sadness. Differences in music. The high and the lows. The changes in me have scared me. I know that I don't spend as much time here. Not as much as would like. Most of my computing time is on World of Warcraft and it saddens me. I am a funny guy and that seems missing of late. I think that vid brought it back. There is not as much music here anymore........ That will have to change!
posted by personallog! @ 2:12 pm   0 comments
Thursday, January 10, 2008
So...This Tysabri....Good or bad?
Questions have been running through my head. Do I want to try this? What color is it? When do I start? She said it's white! I have read the reports. People have died from it.... It's a risk isn't it? Worried hippy here.

What if's are fluid around me and I am drowning. Tysabri... I am a favorable case...Case. Shit! I am a case! Time to accept another jump into the unknown... I would rather hear the noise of an engine and the feeling of getting ready for a parachute jump. I have heard good reports about Tysabri. I am on the waiting list. Should be about a month. MRI before that. It's the 'not knowing' that I find difficult. I am just going to go for it. PMA after all!

I have taken harder drugs with equal risk for fun. Lets give it a chance.

The thing is... Do you know the waiting time for a MRI on the NHS? Its about 3 years if you don't have a proven thing wrong with you. YOU GET A DIAGNOSIS AND ITS DAYS! What do you need to be MRI. That's messed up. Anyway I have new things to think about. White stuff. Satan's sputum or nectar of the gods? Hmmm, we will see.

Stay well,
posted by personallog! @ 10:10 am   5 comments
Wednesday, January 09, 2008
Bring on the new nero!
Right... Today is the 1st visit to my local nero. You know the score.... Pee in this cup, how far can you walk unaided. That type of the thing. I don't even have a GP yet(I have an appointment on Friday!)The strange thing is, I am as nervous as I were when I went to my first. When I get his name I will of course put it up here. I know I won't have bad news like last time but I still have that feeling. Wierd eh!

Up early and ready to go 2 hours before I have to be. I will compleate this update later. Well thats if I don't get back on World of Warcraft with my dark elf Shallot.Hehe. I don't remember the world I am in or what wow server I am on Nat. The memory is not as good as it used to be. Speak soon.

Stay well,

New neuro : Dr Kowalewska -Zietek (female)
New drug to try: Tysabri (natalizuhab)
I knew there would be something.
posted by personallog! @ 8:42 am   1 comments
Friday, January 04, 2008
Errr...Sorry it's late but happy new year!
Everything is 4 days late since Xmas. I blame the Cafe Del mar back catalogue and world of Warcraft....OK its my fault.

It's been really good for me to get back to enjoying my time surfing the net and playing games. I have a 3 day beard and an ever growing bum print on my PC chair and I don't care. This retirement thing rocks. No worries....Really!

Well there is one thing.... Jen Say's I snore. I never used too. I think its a sign that I am now relaxed and comfortable. I am sure its not Warcaft. Maybe we need a new bed. Joy. More money. Oh well.

My legs are abapting to the extra work and I am finding the excercise enjoyable. It's a pain not having everything very close but I am getting used to that too. I like this year so far. New years resolutions... I have not made any. Don't promise yourself any thing. That's it. I think I am happy with that.

Well I am back! Hope you had a good holiday season and Santa brought everything you wanted.... And no cure yet so I guess we have to get on with it eh!

Radiohead Videotape - In Rainbows - Live from the basement

I can't wait for the album. Next one on my shopping list.

Stay well,
posted by personallog! @ 7:24 am   4 comments
ms....not just a diary
About Me

Name: personallog!
Home: St. Annes, Lancashire, United Kingdom
About Me:
I am 6ft 3" skinny and not well. I was diagnosed with ms in 2004 and I would like to speak with others who have ms. I have a want to raise money for ms charities. We have to find a cure for this hell!!!! See my complete profile

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