Right I am going to pop in to everyones blog and make a comment today. What do you want out of life and what do you think we should do? To be honest I want to know what we should be doing. What do you want to happen and how can 'I' help you? Jumping out a plane was a bit of a trek, weather permitting and all. There must be something I can do with an active mind and a semi active body. Is this part of the hell of ms??? Ive got to be able to do something!!!! Tell me! It madness not doing something! Tell me what I should do PLEASE!!!!!!!! Do something today, just tell me! And if 1 of you says get a hobby I will crack! It seems that only 1 of you sent me a sound file so you dont want a theme tune to ms! WHAT DO YOU WANT FROM ME???? Do you Care a lot? I cant work so give me something please.
You are doing a great job with I am very sure! I dont have kids but want to throw myself into something with equal vigor! I want to care alot about something! Does that make sence? I might have this disease but it doesnt have me yet! I want you to want me to do something too! Any idea's?
Would it be possible to go back to school? Or you could find a cause you care about (could be MS or something else) and throw yourself into activism. There must be lots of activist groups where you are. How do you like public speaking? Maybe you could organize something with the ms society where you go talk to different groups about ms? You are an inspiring fella, so you could also talk one on one with newly diagnosed MSers. You've been strong through so many things that you can show people that there is life after an MS diagnosis. You could try to get a governement grant and make a documentary about living with MS. How are your hands/arms? Do you play an instrument? You could learn the drums or guitar and then you could join/start a band.
Sorry I didn't send you a sound thing; I don't know how. Thanks for the copaxone stuff. Can you tell me what an injection site reaction is like? Do you know a few Stephs? Because I am not sure what photo you are talking about. Holy long-winded comment, Batman! Take care.
I must apologize for this one because I can't help but think this has a little something to do with our conversation yesterday. Hmm....I was the one questioning things and you were totally cheering me up, what happened? You have helped so many people through your blog and just being you! You are a strong willed man who I truly believe can do anything you want (MS or not). It sucks having MS...we all know that because of the limitations. I guess we just need to learn to adjust. You are much better at that than I am! :)
I agree with Steph, there are so many things that you have to offer and maybe there is something that you can do through your local MS Society (maybe they have a MS Ambassador program there). I know you have some things planned for the upcoming year which will keep you busy. Have you ever just sat down and made a list of things you want to do before you die? (realistic or not....say like jumping out of a plane, done) Maybe if you put things down on paper that interests you then slowly you can work towards crossing some of them off of your list. Everything else can go day by day (seeing how life is unpredictable anyway). This way you are working towards achieving things that you have always wanted to do....and you are finding creative ways to make those things happen! Just a thought.
If you are around later we should talk...you sound depressed and that is NEVER a good thing! You take care of yourself and never think that people don't care, obviously we do or we would not be here everyday to check up on you and make sure you are doing okay. You know where I am if you need to talk! Love ya.
Name: personallog! Home: St. Annes, Lancashire, United Kingdom About Me:
I am 6ft 3" skinny and not well. I was diagnosed with ms in 2004 and I would like to speak with others who have ms. I have a want to raise money for ms charities. We have to find a cure for this hell!!!!
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Me? I'm rasing kids. That's what I'm doing. It's not for everyone, but you can bet your bottom dollar that I'll be rasing the best damn kids I can.